Wednesday, February 26, 2014

Dietary Privilege

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You are a bully.  In your article, you single out a specific group of people for conditions which many of them cannot control, and insist that they be treated differently, or ignored completely, because of their special needs.  You are no better than the girls who harassed me every day at lunch because my food looked and tasted differently than theirs.  You’re no better than the friend whose birthday party I attended, but who let me sit alone in the party room finishing up a crumbly gluten-free cupcake while she partied with the other guests elsewhere.  You are no better than the counselor at my day camp who tried to force-feed me a soft pretzel because he was ignorant and lacked compassion.  And you are no better than the girl on my study abroad program who started complaining that my gluten free meals were preventing her vegetarian meals from containing gluteny goodness.  Your article was petty and immature.  You care more about what you’re eating than what others around you are feeling.

Let me elaborate:
Right off the bat, your sarcasm is condescending and off-putting.  There are more items than “air” that are “gluten, nut, and egg-free,” and store-bought.  If you did your research, you would know that brands like Enjoy Life produce snack products that are free of the 8 most common allergens, including gluten, nuts, and eggs, and are actually tasty.  In fact, there are people who are allergic to gluten, nuts, and eggs and manage to eat more than just air.

If you think that you’re reaching the end of your rope trying to accommodate a child’s allergies for ONE classroom celebration, imagine trying to be the mother of a child with a serious or life-threatening allergy (by the way, I’m not a mother yet, but I’ve learned from my own mother that anything that puts your child in pain is considered serious by motherhood standards).  Allergies don’t stop existing just because homeroom is over and your homemade peanut butter cookies are all eaten up.  Imagine being my mother, 22 years ago, when no one had heard of Celiac Disease and even nutritionists didn’t know what “gluten-free” was.  If you’re at the end of your rope now, you must have a very short rope—it’s a good thing your children don’t have allergies because you wouldn’t be able to handle them.

The truth is, every kid wants to eat the “made-from-scratch cupcakes, the ones made with fresh butter, sugar and yes, real flour with real gluten in it”, but not every kid can.  And younger kids might not even remember that they can’t until it’s too late.  You don’t want your kid to miss out on homemade goodies because of other kids’ allergies?  Well, I don’t want my kid getting sick, or worse, because your homemade goodies looked too good to resist.  If it’s really that important to you to make something homemade instead of buying something in a store--because yes, these things are expensive, but some people have to pay 8 dollars for a loaf of bread or they will never be able to eat a sandwich.  Can you imagine a childhood without ever eating a sandwich?—then buy ingredients that everyone can enjoy and figure out how to make something yourself.

You might think you understand allergies—but were you ever a child with allergies?  Were you ever a 5 year old who couldn’t participate in the classroom party because of your egg-white allergy?  I don’t ask my friends to accommodate my special needs either—but they do it anyway, because they want to, because they care about me, because they don’t want to exclude me.  And sometimes they make mistakes and accidentally add an ingredient which isn’t gluten-free, or sometimes the item they have bought or prepared isn’t the tastiest, but my friends are the kinds of people who accommodate everyone, even without being asked.  You need new friends.

No one is asking you to deprive a child of anything—that’s the point.  No one should have to miss out, not even the kid allergic to nuts, eggs, and gluten.  You clearly already know how to accommodate food allergies because you have done so before, for the kids on your son’s soccer team, or for his classmates.  The reason people are resorting to gummy bears and juice boxes (which by the way, don’t sound so bad to me) is because they are uneducated and don’t know about all of the options.  So before you throw your hands up and give up, why not speak to the parents of the kids who are allergic to items, and see what they suggest?  Most parents are super knowledgeable and happy to help, especially if it means their child will be included.


Also, I don’t appreciate you referring to my dietary restrictions as “allergy insanity.”  Perhaps you are right—maybe all birthday parties should be banned, especially if store-bought items can’t be trusted as safe.  Just so you know, these days the FDA has much stricter guidelines about what labels need to go on foods, to avoid the very thing that happened to your classmate in high school when she ate a Twix.  Most prepackaged food items are now over-labeled—meaning that companies alert you to every possible trace of any allergen, even if the food was nowhere near that allergen at the time that it was made. 
It’s not that hard to be an accommodating, caring compassionate person.  Every day, parents whose kids are diagnosed with various allergies need to figure out how to accommodate their child’s needs while also helping them to live as normal a life as possible.  Just because you don’t want to put a little bit of effort into figuring out a treat that is safe for everyone doesn’t mean a child should be singled out and made to miss out on the fun.

I grew up in a world where food made me different, an outsider, the “other.”  Twenty-two years later, I still can’t sit down to a meal without someone commenting on the way my gluten-free food looks or tastes, or expressing surprise at the fact that what I am eating is gluten free, especially if it’s the same thing they are eating.  Sure, kids will be kids, but some kids never grow up.  Your article isolated and bullied me into feeling emotions that I have not been made to feel since elementary school.  It was rude and inconsiderate, and your points were selfish.  And worse yet, you lumped everyone with food allergies together—completely ignoring the vast array of intolerances and the way they manifest.

The truth is, I see articles like yours as a symptom of the “fad diet” phenomenon that has plagued society for the past 5 to 10 years.  I wish to separate myself from people who are giving up gluten by choice and let you know that many people have legitimate allergies.  Celiac Disease, by the way, is not even an allergy—it’s an autoimmune disorder where my body attacks the very proteins (gluten) that are supposed to nourish it.  I’m not choosing to eat gluten free because I think I’ll lose weight, or feel better—I have to keep gluten free in order to continue to live a healthy life.  People who are truly diagnosed with Celiac Disease risk malnourishment, cancer, and eventual death if they do not stick to their diets.  So while it might seem ridiculous that so many people have dietary restrictions these days, the prevalence of accurate testing and the increased knowledge of physicians actually allow children to lead happy and healthy lives from a much younger age than once was thought possible.  Of course, their emotional happiness is compromised when they interact with hateful people like you.

No one’s telling you that your kid can’t have a birthday, or even a birthday party, because other kids are allergic to the ingredients you see as necessary to include in a birthday treat.  I’m not asking you to stop having birthday parties for your kids because of my dietary restrictions—I’m not even telling you not to send in treats with your child.  I just ask that you have a little compassion and respect for those people who cannot participate in the celebration, because, as you so clearly stated, you can’t have a birthday party without a cake.

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